This site is intended for patients and caregivers.

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Understand

Discover

aH

your

US

Welcome to a community of people who live with atypical hemolytic uremic syndrome (atypical-HUS), care about someone who does, or want to learn more about this rare disease.

We invite you to explore the education, support, and connections available here. Wherever you are in your journey, you don’t have to face atypical-HUS alone: your US is waiting.

LEARN ABOUT aHUS GET SUPPORT NEAR YOU

Stay informed and find community through live and virtual educational events.

SEE THE SCHEDULE See the schedule

Take the next step

Newly diagnosed or looking for support for yourself or a loved one living with atypical-HUS? Our resource kit is a good place to start.

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Get in-person or virtual one-on-one support

There’s a dedicated Patient Education Manager (PEM) in your area ready to meet with you to help you navigate life with atypical-HUS.

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Sierra

Patient Education Manager/Mid-Atlantic
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Kelly

Patient Education Manager/Southeast
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