This site is intended for patients and caregivers.

For healthcare professionals

Books & Brochures

Order any of our complimentary books and brochures for yourself, your child, your child’s teacher, or anyone in your life who wants to know more about what it’s like to live with a rare disease.

Books for kids

A Day With Nurse Jen

This story follows Nurse Jen as she cares for several children with atypical-HUS, helps them understand the disease, and helps build their confidence.

Zara Shares Her Stripes

Learn about some unusual animals with unique characteristics and how they come together to create a very special, and rare, community.

Educational Brochures

These brochures are full of helpful information about atypical-HUS and how it affects adults and children. The children’s version also has an illustrated section about the complement system especially for young readers.

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