Resources and community connections

Even though atypical-HUS is rare, there are people who’ve gone through what you’re experiencing right now.1 There are resources, organizations, and support groups on this page that can help you.

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This complimentary program offers customized assistance including disease information, community resources, and ongoing support for patients living with atypical-HUS and their caregivers. No matter where you are in your journey, OneSource and the OneSource Case Managers can help.

Get started with OneSource

External Resources

The aHUS Foundation

This volunteer organization brings patients, family, caregivers, researchers, and medical personnel together to share information and personal experiences, all with the goal of improving the lives of people living with atypical-HUS.

Learn more

National Organization for Rare Disorders

Dedicated to helping people with rare, or “orphan,” diseases. This organization helps patients access assistance programs, hosts meetings for patients with atypical-HUS and their families to help them connect to others, and provides information on rare diseases by sharing patients’ personal stories.

Find out how they can help you

Genetic and Rare Diseases (GARD) Information Center

This program is dedicated to the advancement and publication of current, reliable, and easy-to-understand information about rare and genetic diseases (available in English and Spanish).

Check out GARD

Children’s Rare Disease Network

A leading rare disease patient advocacy organization. Get information and support and join the cause.

Learn more