Discuss aHUS with your Doctor

Here you will find guides to help you and your doctor work together on managing aHUS, whether you're new to the disease or currently being treated for aHUS by a nephrologist, hematologist, or your primary care physician.

Discussing a recent aHUS diagnosis with your doctor

Sometimes it’s hard to take in so much information, especially with a condition as serious as aHUS. That’s why it’s good to prepare some questions before you visit with your doctor.

Questions you may want to ask

  • What's the most important thing I should know about aHUS?
  • How would you suggest I manage my aHUS?
  • What kind of treatment is available?
  • How often will I need to get treated?
  • Since aHUS is a lifelong disease, how will lifelong treatment affect my child?
  • Will aHUS impact any of the medication(s) I currently take?